Belgian Journal of Paediatrics
Top 10 Guidelines for Following up a Person with Epilepsy
Vol. 27 No. 3 (2025), State of the Art
Vol. 27 No. 3 (2025)

Top 10 Guidelines for Following up a Person with Epilepsy : Edited by The Vlaams Netwerk Zeldzame Ziekten / Epilepsy members

State of the Art
Published 2025-11-03
Ann Blomme
Epilepsiegroep Ikaros, Evergem, Belgium
Evelien Carette
UZ Ghent, Department of Neurology, Ghent Belgium
Barbara Eichenpecher
Epilepsiegroep Ikaros, Evergem, Belgium
Martin Herklots
Jessa Hospital, Department of Neurology, Hasselt, Belgium
Ine Hoogwijs
UZ Brussel, Department of Paediatric Neurology, Brussels, Belgium
Anna Jansen
Antwerp University Hospital, Department of Paediatric Neurology, Edegem, Belgium
Arie Rijkenberg
Patient representative
Lauranne Scheldeman
UZ Leuven, Department of Neurology, Leuven, Belgium
Eva Schoeters
RaDiOrg, Rare diseases organisation, Brussel, Belgium
An-Sofie Schoonjans
Antwerp University Hospital, Department of Paediatric Neurology, Edegem, Belgium
Laura Seynaeve
UZ Brussel, Department of Neurology, Brussels, Belgium
Evelien Vancaester
AZ Groeninge, Department of Neurology, Courtray, Belgium
Annelies Van Dycke
AZ Sint-Jan, Department of Neurology, Bruges, Belgium
Greet Vankersschaever
Domus Medica, General Practitioners’ Association, Antwerp, Belgium
Kristien Verhaert
Revalidatiecentrum Pulderbos, Epilepsy Centre, Zandhoven, Belgium
Sarah Weckhuysen
Antwerp University Hospital, Department of Neurology, Edegem, Belgium
Lieven Lagae
UZ Leuven, Department of Paediatric Neurology, Childhood Epilepsy Centre, Leuven, Belgium
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Keywords

Epilepsy
Child
Adult
Guideline

Categories

How to Cite

Blomme, A., Carette, E., Eichenpecher, B., Herklots, M., Hoogwijs, I., Jansen, A., Rijkenberg, A., Scheldeman, L., Schoeters, E., Schoonjans, A.-S., Seynaeve, L., Vancaester, E., Van Dycke, A., Vankersschaever, G., Verhaert, K., Weckhuysen, S., & Lagae, L. (2025). Top 10 Guidelines for Following up a Person with Epilepsy : Edited by The Vlaams Netwerk Zeldzame Ziekten / Epilepsy members. Belgian Journal of Paediatrics, 27(3), 163–168. Retrieved from https://belgjpaediatrics.com/index.php/bjp/article/view/414
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Abstract

The “Vlaams Netwerk Zeldzame Ziektes / Epilepsy (VNZZ)” has in recent years worked on a number of guidelines that can be used in the follow-up of a person with new or already known epilepsy. The VNZZ/epilepsy consists of representatives of first (Domus Medica), second (regional hospitals) and third line (university centres and epilepsy centres), with also members of the Flemish Epilepsy League and patient associations (RadiOrg, Ikaros). The guidelines should improve the cooperation between the different lines in medical care, so that every person with epilepsy can be followed correctly by the general practitioner, paediatrician and (paediatric) neurologist. It will also allow the difficult-to-treat patient to be referred adequately and quickly enough to the more specialised third line, for expert diagnosis and treatment. Although these guidelines are made both for children and adults with epilepsy, we believe also the paediatrician can benefit from the insights more specifically relevant for adults.

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